Epilepsy and Incontinence
What is your Gender
| 76% (23) | Male | |
|---|---|---|
| 23% (7) | Female |
30 voters have answered this question.
What is your age
| 0% (0) | Less then 5 years old (please ask a parent or guardian for permission to fill this poll in, and for help with answering the questions or leave) | |
|---|---|---|
| 0% (0) | 6 - 7 | |
| 0% (0) | 7 - 8 | |
| 0% (0) | 8 - 9 | |
| 0% (0) | 9 - 10 | |
| 0% (0) | 10 - 11 | |
| 0% (0) | 11 - 12 | |
| 0% (0) | 12 - 13 | |
| 0% (0) | 13 - 15 | |
| 3% (1) | 15 - 20 | |
| 6% (2) | 20 - 25 | |
| 36% (11) | 25 - 30 | |
| 26% (8) | 30 - 40 | |
| 3% (1) | 40 - 45 | |
| 3% (1) | 45 - 50 | |
| 10% (3) | 50 - 60 | |
| 0% (0) | Older Please specify | |
| 10% (3) | Do not wish to say |
30 voters have answered this question.
Do you have Epilepsy
| 96% (29) | Yes | |
|---|---|---|
| 3% (1) | No (Please leave) | |
| 0% (0) | No but I am answering for a child or disabled person with Epilepsy |
30 voters have answered this question.
What type of Epilepsy do you have
| 50% (15) | Absence | |
|---|---|---|
| 10% (3) | Peti-Mal | |
| 20% (6) | Partial | |
| 26% (8) | Myoclonic | |
| 6% (2) | Mytonic | |
| 33% (10) | Grand-Mal | |
| 53% (16) | Tonic Clonic | |
| 3% (1) | Cognitave | |
| 30% (9) | Sleep seizures | |
| 0% (0) | Frontal Lobe | |
| 16% (5) | A Tonic | |
| 6% (2) | A Clonic | |
| 0% (0) | A Typical Absence | |
| 10% (3) | Lennox Gastaut Syndrome | |
| 0% (0) | Rasmussen Syndrome | |
| 0% (0) | Psychogenic Seizures | |
| 0% (0) | Reflex Epilepsy | |
| 0% (0) | Emotional Seizures | |
| 0% (0) | Temporal Lobe Seizures | |
| 20% (6) | Complex Partial | |
| 6% (2) | Dravet Syndrome | |
| 3% (1) | Other Please Specify |
30 voters have answered this question.
Do you have any other medical condition or disability, other than epilepsy, that renders you incontinent
| 56% (17) | Yes Please specify | |
|---|---|---|
| 43% (13) | No |
30 voters have answered this question.
If yes does your incontinence affect you
| 10% (3) | I am not incontinent | |
|---|---|---|
| 6% (2) | I am only incontinent during seizures | |
| 16% (5) | Light leakage | |
| 16% (5) | Moderate Leakage | |
| 6% (2) | Heavy Leakage | |
| 6% (2) | Severe Leakage | |
| 36% (11) | Total leakage, (no control) |
30 voters have answered this question.
Does your incontinence affect your bladder or your bowel.
| 33% (10) | Bladder | |
|---|---|---|
| 0% (0) | Bowel | |
| 66% (20) | Both |
30 voters have answered this question.
Do you use any form of protection
| 0% (0) | Small Pads | |
|---|---|---|
| 6% (2) | Medium sized pads | |
| 3% (1) | Large Pads | |
| 23% (7) | Water proof mattress protector | |
| 3% (1) | Chux | |
| 66% (20) | Adult Diapers | |
| 23% (7) | Youth Diapers | |
| 0% (0) | Childrens Diapers | |
| 26% (8) | No |
30 voters have answered this question.
Are you able to change yourself after an accident
| 40% (12) | Yes | |
|---|---|---|
| 20% (6) | Yes but need help | |
| 40% (12) | No I need to be changed by someone else |
30 voters have answered this question.
If no, who changes you
| 26% (8) | Mother | |
|---|---|---|
| 10% (3) | Father | |
| 10% (3) | Brother | |
| 10% (3) | Sistor | |
| 10% (3) | Friend | |
| 40% (12) | Trusted Adult | |
| 23% (7) | Nurse | |
| 30% (9) | Support worker | |
| 13% (4) | School Nurse | |
| 16% (5) | Carer | |
| 6% (2) | Teacher | |
| 10% (3) | Therapist | |
| 13% (4) | Other Please Specify | |
| 43% (13) | I can change myself |
30 voters have answered this question.
If you are incontinent how does having a seizure affect your incontinence
| 30% (9) | Makes it worse | |
|---|---|---|
| 0% (0) | Stops me having an accident | |
| 43% (13) | Guarantees I will have an accident | |
| 26% (8) | Don't know |
30 voters have answered this question.
If you are not incontinent, does having a seizure make yo loose bladder or bowel controal
| 26% (8) | Yes Bladder Controal | |
|---|---|---|
| 3% (1) | Yes Bowel Controal | |
| 53% (16) | Yes Both | |
| 16% (5) | No |
30 voters have answered this question.
How often do you loose control of your Bladder or Bowel during a seizure
| 23% (7) | every day | |
|---|---|---|
| 10% (3) | several times a week | |
| 10% (3) | once or twice a month | |
| 6% (2) | three or four times a year | |
| 40% (12) | every time I have a seizure | |
| 10% (3) | I don't |
30 voters have answered this question.
How often do you have a Seizure
| 20% (6) | over 100 a day | |
|---|---|---|
| 3% (1) | 50 - 100 a day | |
| 0% (0) | 1 - 50 a day | |
| 0% (0) | 50 - 100 a week | |
| 20% (6) | 1 - 50 a week | |
| 20% (6) | 2 - 3 a month | |
| 16% (5) | Don't know | |
| 20% (6) | Other Please Specify |
30 voters have answered this question.
If you loose Bladder or Bowel control during a seizure, do you use any kind of protection
| 0% (0) | small pads | |
|---|---|---|
| 6% (2) | medium sized pads | |
| 3% (1) | large sized pads | |
| 13% (4) | waterproof mattress protector | |
| 0% (0) | chux's | |
| 70% (21) | Adult Diapers | |
| 23% (7) | Youth Diapers | |
| 0% (0) | Childrens Diapers | |
| 3% (1) | Other Please Specify | |
| 23% (7) | No |
30 voters have answered this question.
How long do your seizures last
| 3% (1) | Constantly having seizures 24/7 | |
|---|---|---|
| 0% (0) | More than an hour Please Specify | |
| 0% (0) | Half an Hour | |
| 3% (1) | 20 Miniutes | |
| 13% (4) | 15 miniutes | |
| 20% (6) | 10 miniutes | |
| 60% (18) | 5 miniutes |
30 voters have answered this question.
Do you have one seizure followed by another
| 53% (16) | Yes | |
|---|---|---|
| 33% (10) | No | |
| 13% (4) | Don't Know |
30 voters have answered this question.
If you loose bladder or bowel control during a seizure and use protection, are you able to change yourself after the seizure ends.
| 30% (9) | Yes | |
|---|---|---|
| 13% (4) | Yes but I need help | |
| 56% (17) | No I need to be changed by someone else |
30 voters have answered this question.
If no who changes you
| 36% (11) | Mother | |
|---|---|---|
| 23% (7) | Father | |
| 10% (3) | Brother | |
| 10% (3) | Sistor | |
| 53% (16) | Nurse | |
| 23% (7) | Paramedic | |
| 36% (11) | Support Worker | |
| 26% (8) | Carer | |
| 23% (7) | Theripist | |
| 23% (7) | Doctor | |
| 10% (3) | School Nurse | |
| 3% (1) | Teacher | |
| 33% (10) | Friend | |
| 63% (19) | Trusted Adult |
30 voters have answered this question.
If you wear diapers because of your epilepsy, what type do you use
| 30% (9) | Tenna | |
|---|---|---|
| 16% (5) | Attends | |
| 0% (0) | Lille | |
| 10% (3) | Molicare | |
| 6% (2) | ComiDry | |
| 3% (1) | Tranquility | |
| 30% (9) | Store own brand (adult or youth diaper) | |
| 0% (0) | Good nites | |
| 0% (0) | Underjams | |
| 0% (0) | Prevail | |
| 3% (1) | Luvs | |
| 0% (0) | Pampers | |
| 0% (0) | Huggies | |
| 0% (0) | Store own brand (children's diaper) |
30 voters have answered this question.
If you wear Diapers for your epilepsy, please describe how people react when they see you having a seizure and notice you wearing a diaper. If you don't wear diapers for epilepsy or do not know how people react to you in this situation, just type N/A
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30 voters have answered this question.
This has happened to me many times in the past. Have you ever had a seizure and come around from it to find that you are in hospital, lying in bed with the rails up and wearing a wet and soiled diaper.
| 53% (16) | Yes | |
|---|---|---|
| 46% (14) | No |
30 voters have answered this question.
What is your opinion of hospital staff you leave unconscious patients in wet and soiled diapers after a seizure. Do you think hospital staff should change patients before they come around from a seizure or after. Do you think the majority of patients who require an incontinence brief for epilepsy, would have the capability to change themselves after a seizure. Please make your answers to the three parts of this question brief and to the point. No more then three sentences per section.
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30 voters have answered this question.
What is the most embarrassing situation you have been in regarding epilepsy and incontinence
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30 voters have answered this question.
Do you have any warning when you are going to have a seizure
| 26% (8) | Yes | |
|---|---|---|
| 73% (22) | No |
30 voters have answered this question.
If yes please describe how you know when you are going to have a seizure and what you do. If no just type N/A
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30 voters have answered this question.
When you have a seizure are you incontinent
| 20% (6) | Before the seizure starts | |
|---|---|---|
| 90% (27) | During the Seizure | |
| 43% (13) | After the Seizure |
30 voters have answered this question.
(A rather dramatic question but I am curious) How do you feel about having your diaper changed and bottom wiped by someone else after soiling yourself during a seizure. Please describe how this makes you feel. I personally hate this.
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30 voters have answered this question.
Aside from incontinence, what other symptoms do you have either after a seizure or as a result of your epilepsy. If you do not wish to say, just type N/A
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30 voters have answered this question.
